Monday, October 17, 2005

Help!! All of the posts to this Blog were accidentally erased today. I am so sorry for my error. Please re-post all messages to the Blazeman as he has not seen them yet.

Thanks,
Cliff

79 Comments:

At 6:44 PM, Blogger Cliff said...

Way to go Blazeman!! We are so proud to have been a part of your effort and so thankful for your friendship.

All our love,
Cliff & Vicki

 
At 6:44 PM, Blogger Cliff said...

Help!! All of the posts to this Blog were accidentally erased today. I am so sorry for my error. Please re-post all messages to the Blazeman as he has not seen them yet.

Thanks,
Cliff

 
At 8:40 PM, Blogger Dawn K. said...

Congrats Jon! We knew you could do it. Much Love, the Kochaneks

 
At 7:55 AM, Blogger Jeff D said...

"Back in the day when Ironman first started, we did it for the love of it and nothing more."
-Cowman

Congrats to the Blazeman, for the love of it AND more!

 
At 9:13 AM, Blogger Brian said...

John, Congratulations on living your dream. We were sitting at the computer tracking the BLAZEMAN all night. You inspire everyone. We are proud of you. ALS is now in the spot light and we will do what it takes to help in your effort.

Our love,
Erin, Brian, Zachary, Kevin and Kaylee Kochanek

 
At 7:06 PM, Blogger Toni said...

Hi Blazeman! Congrats on becoming an Ironman! I came across your website after reading an article on Active.com about you.

It sounds like you have led and are STILL leading an amazing life. Full of inspiration and tenacity.

My wish from the previous comment I had left a couple of days ago was granted. The swells were calm, wind was at your back (and front I heard), the heat was bearable, and Pele was in a fabulous mood to let most finish.

Tracked you for most of the day on Saturday. I hope it wasn't too hard of a day and that you had lots of fun! Hope to read about it soon.

Take care Ironman!

Toni

 
At 7:46 PM, Blogger Celeste said...

Blazeman. So excited to read about you finishing the race! So far I've only done olympic and sprint distance triathlons. My hat goes off to you!

I reported your event to my friend whose husband has ALS. I've formed a team in their honor to participate in the local ALS walk here in Atlanta on Oct. 29th as part of a college reunion event. Trying to raise money for the cause and a cure.

Hang tough, you never know when the next medical breakthough will happen and I hope it happens in time to benefit you. I'm sure your NBC special will do much to promote the cause as well.

I think you've done some wonderful and amazing things in your life so far and I've no doubt you'll be doing many more amazing things over these next next few years.

Again, Congratulations on your race, Ironman!

 
At 10:16 AM, Blogger Coach Lisa said...

Blazeman,

You are truly and inspiration and have made a huge difference in this world.

I am happy to know that you finished strong in Kona. I look forward to hearing the post race report.

I shared your story in my latest women's multisport newsletter that goes out to 1150 women in Austin, Texas. I will send you a copy.

Lisa, fellow Ironwoman and writer

 
At 12:35 PM, Blogger Chris said...

Niiccce!!
No way you weren't finishing I saw it in your eyes!Most of us walk around with are eyes closed.Yours are wide open!Thanks for being a power of example,you kick ass buddy!

 
At 1:44 PM, Blogger Ruth Schubert said...

Hi Jon -

I heard your story all week in Kona and was so inspired by your brave attitude. I was fortunate to be walking the course when you told your friend, "Blackhawk down". I asked your friend what that meant and he told me you weren't doing so well. He also told me who you were and asked me to say a prayer for you - I think I said 20 prayers.

When I was getting on the airplane to come home another friend of yours handed me a card and asked me to e-mail you.

You are an amazing human being!! Some people are put on this planet to make a huge difference in other peoples lives. I think most of us do not get to realize the difference we make. You should feel truly blessed in knowing that you have inspired thousands of people to push themselves past their comfort zones and accomplish things that they never thought were possible. You have made a huge impact on my life and have made me realize that there is NOTHING that we can't do!!!

Fellow Ironman - Ruth Schubert

 
At 4:55 AM, Blogger Bonnie said...

My brother died of muscular dystrophy and I believe that all theses diseases are interrelated, I am not in the medical field but I always wondered why some people get sick and others don't especially in incurable diseases. Scientists must research and doctors try to care for the patients the best that they can do and the families can get support. As a Nichiren Shoshu Buddhist I believe that this is karma( thought, action deed) don't get me wrong I am not blaming the patient I just think that people have to start looking at things from a deeper level from the aspect of Cause and effect (time without beginning); please don't hesitate if you want more information.
Sincerely yours,
Bonnie

 
At 7:22 AM, Blogger drdebpa said...

Hey Jon,

My message was prior to the race... You were my student at RIC and I learned lots of things from you, as well... One is about determination. Ray and I hoped the best for you on the race, and now that we are re-blogging (is that a term???) we are so proud of you that we had to call you the next morning. It was great to hear the excitment in your voice... We are amazed by your strength, focus, and determination - all inspirations to us.

Talk soon, buddy. WE LOVE YA.
deb (The original Rocky)

 
At 9:16 PM, Blogger Seany said...

Hey Blazey! Love those new Ironman pics on your website...especially the ones of you doing your "logroll" across the finish line. That was an awesome moment! If you come out to SD for the Blazeman brewfest in Nov., by the end of the night you'll probably be able to get some pics of me doing that same move! haha

-Seany

 
At 1:48 PM, Blogger judy parker said...

Jon: I'm so glad to hear that you finished the IRON MAN. I was thinking about you all day from San Diego. I can't wait to see more pictures on the web site and the NBC special. All my love from Aseltine, Judy

 
At 4:49 PM, Blogger Sachi Richards said...

Jon!!

We are so proud of you! Your will, spirit and determination are an example for all who face adversity. Your JUST DO IT attitude has inspired not only your students, but also your colleagues.

Love,

Sachi and Dave Richards

 
At 9:41 AM, Blogger ERIC P. said...

BLAZEMAN!!! YOU ARE MY FIRST...BLOG THAT IS. IT WAS REALLY GOOD TO SEE YOU @ THE BREW-BASH LAST NIGHT. THE WARRIOR POET LEAVING NON-BELIEVERS IN HIS WAKE.....

 
At 10:24 PM, Blogger Fab said...

Blazi,

I can't wait to see you back in your hometown on December 1st. It was good to have back in San Diego and look forward to seeing you back here sometime soon.

Fab & family.

 
At 7:56 AM, Blogger Blazeman said...

Thank you all for you support!!! This disease... is a bulldozer. I know because I am being bulldozed. "Out of the woods... I'm not even into them yet."

Fighting for Freedom...

The Warrior Poet

 
At 2:26 PM, Blogger pilatehottie said...

poopy! You are so awesome! I miss your poopy face in pilates class. Everyone in San Diego misses you, and not a day goes by that I don't think wonderful thoughts of you and your foam roller. From your only pilate hottie poopy- allison

 
At 2:30 PM, Blogger pilatehottie said...

Johnny, my poopy. Good job on iron man. You are so inspirational and amazing. I am so glad I met you in pilates class. You were the guy doing your own thing in another world, yet so there. You have changed my life in so many ways, I think about you everyday, and I miss you a lot. Ooops, I think I posted 2 blogs. Oh well, take care of yourself- R.O. with the C.O. -Allison

 
At 2:36 PM, Blogger EnterprisingSidney said...

I saw your story on the Special and had to find out who this guy is. It touched me. My sister just finished running the Dublin Adidas Marathon to raise money for AIDS/HIV, with our uncle in mind. He has HIV. I have been considering riding for a cause and you have inspired me to "Just Do IT"! I will pray for you and with you.

 
At 2:44 PM, Blogger kevino said...

Jon:

I watched you compete in the Ironman from my hospital room at Mass. General. I have Cystic Fibrosis and wanted to thank you for your inspiring story and your visibility to ALS. I'm glad you've choosen to be someone that has ALS rather than ALS determing who you are.

Best of luck and god bless! You are never given a challenge that you can't handle and only the strong are given great challenges.

 
At 3:28 PM, Blogger trevhads said...

This comment has been removed by a blog administrator.

 
At 3:30 PM, Blogger trevhads said...

Jon I am very impressed and inspired by what you have accomplished. my family has FALS and has been dealing with this for years. it is great to see you fighting

 
At 3:48 PM, Blogger Laura said...

Just got to see the 2005 Ironman on TV...my daughter has CP and we both loved getting to know you thru the iron man and your google links. You are a huge inspiration to all! We are so personally touched by your will, humor and utter discipline. Thank you Blazeman! :0)

 
At 3:56 PM, Blogger Laura said...

I just had the pleasure of getting to know you via watching the Ironman on TV...my daughter has CP and we were both watching you in awe! Thank you Blazeman for your will, humor and pure essence of soul. We will keep you in our thoughts and our hearts...YOUR OUR MAN!!! :0)

Laura & Maygen...new found fans!

 
At 4:56 PM, Blogger Stacie Tracey said...

Just finished watching the Ironman. WOW great job Blazeman! I remember you training around the neighborhood "back in the day" and we were so proud to see you reach your dream. You are truly inspirational, there should be more people like you in this world. You are in our thoughts and prayers always! God Bless You!!
Love Stacie (Derosier), Gary and Sophia Tracey

 
At 5:50 PM, Blogger Steve said...

Jon
I was watching the Ironman today and saw your story.. WOW.. I was speachless. I am a physical therapist in a rehab hospital south of Boston so I have some idea of what you went through. I am going to talk alot about you in work on Monday. You will be an inspiration to many there. WOW. I am still speachless.
I would love to know how you pulled up after the race? How are you and your body doing today?

 
At 9:23 PM, Blogger PuddyRat said...

Count me as another that saw watched you and your story unfold during Ironman Hawaii. Your courage in the face of your illness left me in tears. When folks like you complete an ironman, I have to wonder what excuses we mere mortals have.

All I can say is wow. You are quite a guy. Congrats on finishing the race.

 
At 10:07 AM, Blogger Fe-lady said...

Blazeman,
Watched you yesterday and I thoroughly enjoyed your poetry and seeing you cross the finish line! You are a true inspiration to everyone. Glad to hear you work with special-needs kids...I do too and they add alot to my life! Don't quit!

 
At 6:55 PM, Blogger joe c. said...

Blazeman,

Never have I been so touched by a warrior story before as I have been by yours. You are a true inspiration to all of us and you remind us to take advantage of every day we have in our lives and "fight the fight".

Ironman was just a stage for a short one act play in your life and the character you displayed, I am sure, is indicative of the life you have led and will continue to lead.

I haven't met you in person, but "Thank You" for allowing me the priviledge of getting to know someone I am sure would be the kind of friend, and comrade I would want to have.

Go, Fight.........WIN!!

Joe C., fellow ironman

 
At 9:59 PM, Blogger Fab said...

Blazi,

This is Jacko...and I am writing to an Ironman...everybody, there is an ironman in the house! The special on NBC was good...I am thankful to have been in Kona with my family and it will stay engraved in our memory for the rest of our life. Buddy, it is now time to tear apart this damn bulldozer.

Fab & the family.

 
At 10:30 PM, Blogger Lisa said...

Hello, Blazeman - I, like so many others, just watched you complete the Ironman in Kona. To say that I was amazed, impressed, and awestruck, all would be understatements. I found myself crying tears of joy as you rolled across the finish, and I do not cry easily, let me tell you!! I frequently watch Triathlons on TV and hope to one day complete an Ironman of my own. I now have an inspiration and many words of wisdom to carry with me along my journey. A man with a spirit such as yours and words as beautiful as yours should not have to fight the fight you are fighting. However, a lesser man probably couldn't handle this with nearly the dignity and strength that you have. You are a remarkable man - you have made me realize the value of life, that maybe I was taking for granted. You make me want to take risks and make choices that aren't always the safe ones. If you haven't already, your insightful and profound "warrior-poet" words should be published for the world to find. You are an inspiration and the world could use you in a more visible light, spreading your messages. I wish you all the best in your fight against this horrible "bull-dozer".

All my best wishes that each of the days of your life are days spent with people you love doing things you love,

Lisa, from Chicago

 
At 6:33 AM, Blogger roberto di giovine said...

Hey John, I like to thank you for inspire me, mostly THANKS for make me erase "I CAN'T" from my dictionary! I will overcome my little stupid physical limitation (lungs permanent demage), push my self to be a better athlete, and a better man. Stop my whining. Thanks.
So I will put your name on my bike, it will remind me to be stronger, I hope you don't mind. I made a little donation to your fund, very small.. I don't have too much money, but let me know if I can't help you with my work, I am a graphic designer-photographer, I can work for you for free if you want to. Roby (and Holly, my wife and P.T.).

 
At 7:47 AM, Blogger brendan said...

Blazeman I saw your story for the first time while watching the Ironman Coverage on NBC and I am truly humbled. Your an inspiration to everyone who reads about you. I was wondering if you could post the poem you wrote that was featured during NBC's story about your fight with ALS. I think it may be the best poem I have heard in a long time and it has a great meaning to me already and I have only heard it once. "Fall Seven Times. Stand up Eight." That is a quote from the new converse commercial for Dwayne Wade, but in all honesty I think it's more appropriate for someone like you who is truly changing the lives of those around you.

Keep fighting the good fight,
Brendan
Pittsburgh, PA

 
At 3:31 PM, Blogger Sophia said...

You are awesome!!!!!!!!!Chicago welcomes you anytime come and visit!!!!

~Sophia, Chicago

 
At 9:41 AM, Blogger Curly Su said...

I sent you those CD's...did you get them???

I kept track of you every second when you were racing. I was crying when you finished. You're amazing.

 
At 1:49 PM, Blogger Marlene said...

Good job! You ran for all ALS patients. When I close my eyes, I see myself running as well. Continue to stay strong. Everyone progesses differently.
A PALS Friend, Marlene
www.marlenesangels.org

 
At 4:07 PM, Blogger Clayton said...

Jon, could you please post on your web-site the poem that you read on NBC during the Ironman Competition. It's one of the most honest and truthful inspirations I've ever heard. Instead of being small in life, you've inspired me to try and live larger. Instead of living with fear of any type, or making excuses, to be more of an amazing person like yourself. Your determination and heart in the Ironman was HUGE, and is proof the word "can't" doesn't exist, unless we allow it to. You're a larger than life person in strengh and spirit, and a true inspiration in how to really live ...
Clayton

 
At 9:30 AM, Blogger Flatman said...

I can summon no words to describe the awe I feel when I see you cross that finish line!

Congratulations!!!

 
At 9:51 AM, Blogger Babs said...

you don't know me, but i saw you on the NBC broadcast.
thank you for not stopping.
you have inspired me to be more alive today then yesterday.

thank you

 
At 10:01 AM, Blogger Babs said...

oh- also i was so inspired i posted about you on my blog.
thank you!

 
At 8:42 AM, Blogger Kyle said...

Like so many others, I watched your story during NBC's coverage of the Ironman. Your drive is a true inspiration, but what really hooked me was your poem about not caring what we did for a living, rather what we yearned for in life, etc.

I have no true understanding of your situation and your daily challenges; however, I do believe your story can be taken to a higher level to touch people beyond those circulating around the focus of ALS.

Your perspective on life is a true inspiration. I believe that so many people in this world are held prisoner by unseen chains in life - as you said, "the meaning of life, is to live life." It's a shame so many of us, my self included, forget this simple lesson. We might as well be captured by this disease too.

I hope that your story will reach out to so many others beyond those triathlete fans and ALS victims, because it's a story all of us need to hear. I will definitely try to live my life better and more fuller.

Recently, I had the privelage of spending a day with famed investor Warren Buffett. You should try and meet him. He's surprisingly very accessible. His outlook on life is very humbling, even more so when you know he's the 2nd richest person on earth. I heard local people in Omaha even spot him shopping for hoses at Walmart. His views on life inspired me as well and I believe he could help you tell your story.
http://www.berkshirehathaway.com/
God Bless,
Kyle

 
At 3:07 PM, Blogger Mr Blutarski 0.0 said...

Jon,

Great job in Hawaii. Thanks for the information shared on your website regarding ALS. Keep fighting the good fight and God bless.

Tim

 
At 12:10 AM, Blogger Fab said...

Jacko,

Blazi, it's midnight and I just watched the NBC special for the 20th times. It's good man, it's very good...can't wait to see you in your hometown.
Fab

 
At 3:14 PM, Blogger michelle p said...

Hi! My name is Michelle Pernice, I live in New York, on Long Island. I watched the Ironman competition and was extremely inspired by your performance. I've been a part of a group called the ALS committee at my high school since last spring. This January, January 11th 2006, we will be hosting our second annual ALS Benefit dinner. The dinner is coordinated completely by the committee, which is comprised entirely of students. Last year, we raised $90,000, all of which went to the Robert Packard Center for ALS research. I know that New York is extremely far away, but I figured I have nothing to lose by inviting you to join us at our dinner this year. If you chose to, we will present you as one of our heroes. Tommy John and David Cone (Yankees players) will be there in honor of Lou Gherig. Please write me back at shelle055@yahoo.com. Thank you very much, Good luck and stay strong!! Help for today... hope for tomorrow

 
At 6:02 PM, Blogger Big Zim said...

Blazeman, you are facing my greatest fear and have accomplished my dream goal. Quite a paradox. I will be competing in my first Ironman in WI in September...and you will be in my mind and heart. Know that you have burned a permanent legacy with this hopeful Ironman!

All my strength to you!

Chris.

 
At 10:55 AM, Blogger Carson S. said...

Jon,
It was amazing to see all that you have accomplished. I can't stop reading everything on your web page. You are an inspiration. Your actions and words both inspire others, including myself, to do more and give more of themselves in life. Congrat's on your Ironman finish. I truly cannot fathom what it must mean to you.

 
At 6:16 AM, Blogger VIGO said...

Blazeman:
Inspiring to talk with you this week. I was with you in Kona, 2005 At The Ford Ironman Triathlon World Championship. I watched your dramatic pursuit of the True Ultmate form of Human Excellence. This Ironman was the Ultimate "Experience" in what Living Life to its fullest is all about! I was honored to be able to race with you... "Warrior Poet". It is my hope that you Can and Will be able to attend The EagleMan Ironman 70.3 Kona Qualifier June 11, 2006

Blazeman... No Ka Oi( is the best)
VIGO

 
At 2:26 PM, Blogger StevenTriHard said...

You are a incredible inspiration to not only the tri community but humanity! You've touched probably more folks than you can possibly imagine! Just so you know, I've been in corporate world for a while, struggling to get into education b/c thats where my heart is. I have decided to go back to school and JUST DO IT! Why you ask Blazeman??? Well, its because of YOU and your story. You said it better than I've ever heard it bro - "It doesn’t interest me what you do for a living I want to know what you ache for

It doesn’t interest me how old you are I want to know if you will risk looking like a fool for love, for your dreams for the adventure of being alive

I want to know if you can life with failure -yours and mine
And still shout at the edges of a lake, river, or mountain
Yes, I am a warrior poet

It doesn’t interest me to know where you live or how much money you have I want to know if you can get up after I night of grief and despair, warry and bruised to the bone, and do what needs to be done for someone you love

I want to know if you can be alone with yourself and truly like the company you keep in the empty moments of your life and still remember me"

Know you and your family are in my prayers, thoughts, and best wishes!

Peace be with you!
Steven

 
At 5:39 PM, Blogger charlie said...

hey im charlie powell im from flat river middle school you viseted my team and 8th grade today 12/9/05 and i thank you for showing me that i shouldent be a quiter u are my insperation. now i no that i shouldnt quit because i dont no if i could get a good grade on a test or something like that u did the unbeliveable and i no now i can to . i will remember you as my insperation for ever u taught me to never give up.

thank you
charles powell
frms middle school (miamiheatnba21@yahoo.com )

 
At 3:17 PM, Blogger savannah said...

hey jon its savannah from frms i now believe that i can do any thing that i put my mind to thanks to you every 8th grader in that school is going to live up to there dream. if you hadent come in to are school i would have never believed in myself and my life long dream. just like you i wanted to be in the ironman because i new that i would do my best in every event that takes place even though i do have asthma i would still love to be someone that takes place in the ironman because i love to swim bike and run and if the ironman ever takes place on hawaii i know that i will do great because i was in hawaii the same time you were and am going agian in january

 
At 9:05 AM, Blogger brainhell said...

Mr Athlete with the FUBAR Disorder sir,

I have the same disorder. I was a recreational athlete (never competitive), and I also write. Here's what I think: I think that you ARE going to be able to achieve your goal.

 
At 1:53 PM, Blogger kyle cole said...

This comment has been removed by a blog administrator.

 
At 1:58 PM, Blogger kyle cole said...

hey blazeman im kyle cole from flat river middle school and i was so surprised at what you accomplished in your life and you never let down your dream. you enspiered me more than i already was with me dreams. I have something called PJRA (polyarticulur juvinile rheumatiod arthritis) and when i first got it i was 11 years old. it was chrismas day and i couldnt walk for a few days i had my friends carry my bag cause i couldnt do it. but anyway i play competitive soccer and im on 2 different teams and i play all year round but when i was diagnosed with PJRA i had to drop out of it. a few months later my docter said i wouldnt be able to play soccer again but that never stopped me. You see ive played soccer since i was 3 so its my favorite sport but i didnt let down my dream. only a half a year later i was back playing soccer and i was awarded for the best soccer player in the town of coventry and second place for the best in the state.but like i said before just cause i had a disease the i have in every joint of my body dosent mean i cant do what i love and follow my dream. and after i watch your movie i was thrilled and knew that i could accomlish my dream. Thanks alot blazman for giving me more confidence in my self.
from,kyle cole
my e-mail is(vizari656@cox.net)
i would like to talk more with you

 
At 2:14 PM, Blogger warriorguitarplayer said...

Hey Blazeman,

My name is Nick Gola, and I am a student at Flat River Middle School. Your visit was a life altering experience for me, it made me appreciate that I was here doing the things I did on a daily basis. When I sat in the auditorium watching coverage of the Ironman that Mrs. VNK brought for us, I was inspired by the effort you put into everything you did. At the end of the movie when Mrs. VNK was walking up the stage where the program was being screened I watched the luminous shine on her face grow as she announced, "This is not only a shirt that says Blazeman, this is the actual shirt he wore!" From this I was completely astonished. I believed that she got such a valuble item from an auction site like ebay but I was terribly mistaken. As I saw you walking up to the spot where Mrs. VNK was standing I was blown out of my seat. While everyone was applauding I was just to suprised to react. I was about to meet someone who ran the Ironman, one of the most prestigeous races in the world, with ALS and still finish before many other healthy athletes. You accomplished something that deserved much better than clapping, so I yelled out "Your My Hero!" because you are my hero. Someone that puts so much effort into what they do should deserve a medal, so I intend to give you one next time you visit our school, and if you cant, you should most definetly expect it through another source. I am extremely grateful for the contribution you have made not only to the Flat River Middle School 8th grade student body, but the whole entire world for teaching the valuble lesson of never giving up your dreams.

Sincerely,
Warrior Guitar Player : )
Nick Gola

 
At 3:30 PM, Blogger Kristina said...

hi blazeman. just thinking about you today. that is all.

 
At 9:20 PM, Blogger pilatehottie said...

Johnny, You are soooo awesome- You're one of the most special and influential people in my life. Everyday I think of you- I love you soooooo very much take care, and keep in touch- Ally

 
At 5:17 PM, Blogger Fab said...

Blazi,

I am on your website... Keep on being strong, keep on being who you are...thinking about my close friend...that's all.
Jacko

 
At 12:09 PM, Blogger D.C. Bowns said...

Have you seen any information on as seen on tv retail store? I just have not had the best results when blog surfing today. Anywho back to my endless search for as seen on tv retail store.

 
At 3:58 AM, Blogger jmarshall said...

Blazeman,

I read a piece on your awesome accomplishment completing Kona. I am a father of three very young and healthy children. I have been sitting on the sidelines and now would like to get in the game.

You are an inspiration!

Please tell me you have stayed true to the Red Sox!

Best,

Jamie--Gloucester, MA

 
At 4:03 AM, Blogger jmarshall said...

Blazeman,

This is the first blog for me and the first step that I am taken to accomplish a lifelong goal. I am truly inspired by reading about your accomplishment at Kona.

I have three young children and your story has made me truly think things through. Your parents, friends, and anyone associated with you must be proud.

I will help where I can.

Best,

Jamie

 
At 4:56 PM, Blogger jmarshall said...

Blazeman,

I am not certain if my previous notes made it to you, so I am trying again.

I was blown away by your story and truly inspired to get up and live life to the fullest. I have made copies of the article in triathlete magazine--picked it up for something different to read and BAM! I was hit with the Blazeman story of inspiration...I will do a Triathalon this fall. You have inspired me to lace the shoes and prepared to tackle a goal.

I am passing out the article to all my friends and sharing with my company in Seattle.

Best,

Jamie--Gloucester Ma

T

 
At 8:42 PM, Blogger Fab said...

Blazi,

Back in the country and ready to see you very soon. Will talk to you soon regarding Vegas!

Ciao,
Le Det family

 
At 10:00 AM, Blogger Richard Adler said...

Hey there Blazeman

I've been lurking here since Sean told me about your diagnosis. I figured today was as good as any day to crawl out from under the rock I've been lurking from. I saw the photos, you put on you photo page, of that day we climbed on Tahquitz. And I'll finally admit that it was me who got us lost on the descent (hear that Sean?)But all in all, in retrospect, it was a pretty fun day. The highlight, of course, was when you took off your shoes and revealed those pumpkin feet......pretty funny!!

Right before I left Joshua Tree (I live in Bend, Or. now) I did a first ascent of an old top rope route. So being the first ascentionist I get to rename it. You came to mind. My first though was to call it Blazeman. But Pumpkinfoot might be more appropriate. What do ya think?

Anyway, keep fighting the good fight Bazeman (pumpkinfoot) you’re in my thoughts!!!

Richard

 
At 10:25 AM, Blogger bobbyb said...

Welcome to the ALS Registry
http://www.patientslikeme.com/registry

This is the registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) patients. I originally started it as a mailing list and it is now being maintained on the PatientsLikeMe site. If you are a Person with ALS (PALS), you can add your name by signing up for a PatientsLikeMe account and filling out your profile.

I am excited about what we can do with the ALS/MND Registry at the new PatientsLikeMe .
it will be more then just a registry for pals, you can have you own detailed profile page.
If you have any questions email PatientsLikeMe at support@patientslikeme.com.
I think this is going to be great. It is a registry that has
detailed information from the patients who want to share it. Plus
you can come back as often as you want and update your info, so it
is as current as possible, plus see what other pals are doing and how they are doing it, what they are taking.

There are 131 PALS in the registry!
in two weeks from 15+ countries

You can help by passing this info on to other PALS.

http://www.patientslikeme.com/registry

Thanks,
Bobby Brannigan (PALS, diagnosed 1994)

robertb@mitchell.main.nc.us

ALS IS NOT PREJUDICE
WHERE EVER, WHEN EVER, WHO EVER

PatientsLikeMe
A new system of medical care by patients, for patients
a.. Discover better ways to manage your disease.
b.. Benefit and learn from shared experiences.
c.. Connect to those making a difference in your disease.
d.. http://www.patientslikeme.com/

e.. over 220 pals

http://www.patientslikeme.com/registry


Did you Know...
- The US Government spends an average of only $400 per ALS patient per year

- 80% of all patients die within 5 years

- ALS can strike anyone, anywhere and anytime

- The 1 FDA-approved drug for ALS patients extends a patient’s life by only 3 months

- Average age of onset is 48 years old

- People don’t get ALS... Families get ALS!

 
At 10:25 AM, Blogger bobbyb said...

Welcome to the ALS Registry
http://www.patientslikeme.com/registry

This is the registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) patients. I originally started it as a mailing list and it is now being maintained on the PatientsLikeMe site. If you are a Person with ALS (PALS), you can add your name by signing up for a PatientsLikeMe account and filling out your profile.

I am excited about what we can do with the ALS/MND Registry at the new PatientsLikeMe .
it will be more then just a registry for pals, you can have you own detailed profile page.
If you have any questions email PatientsLikeMe at support@patientslikeme.com.
I think this is going to be great. It is a registry that has
detailed information from the patients who want to share it. Plus
you can come back as often as you want and update your info, so it
is as current as possible, plus see what other pals are doing and how they are doing it, what they are taking.

There are 131 PALS in the registry!
in two weeks from 15+ countries

You can help by passing this info on to other PALS.

http://www.patientslikeme.com/registry

Thanks,
Bobby Brannigan (PALS, diagnosed 1994)

robertb@mitchell.main.nc.us

ALS IS NOT PREJUDICE
WHERE EVER, WHEN EVER, WHO EVER

PatientsLikeMe
A new system of medical care by patients, for patients
a.. Discover better ways to manage your disease.
b.. Benefit and learn from shared experiences.
c.. Connect to those making a difference in your disease.
d.. http://www.patientslikeme.com/

e.. over 220 pals

http://www.patientslikeme.com/registry


Did you Know...
- The US Government spends an average of only $400 per ALS patient per year

- 80% of all patients die within 5 years

- ALS can strike anyone, anywhere and anytime

- The 1 FDA-approved drug for ALS patients extends a patient’s life by only 3 months

- Average age of onset is 48 years old

- People don’t get ALS... Families get ALS!

 
At 2:06 PM, Blogger Frank said...

Hi,

Congratulations on your ironman victory !

I support the fight on ALS. Something needs to be done. A while ago I came across this study of intraventricular SOD infusion. I met the authors and they seemed credible. Apparently nobody followed up and many mistakes were made during the study but the authors remain convinced there was something there. It seems sensible to me, but I believe nobody has followed up. It may not go anywhere but I feel it worth looking into.

J Neurol Sci. 1995 May;129 Suppl:13-8.
Pharmacokinetics and tolerability of ventricularly administered superoxide dismutase in monkeys and preliminary clinical observations in familial ALS.

Smith RA et al.


All the best !

--Frank

 
At 7:49 PM, Blogger c1doc said...

I just saw your story on the news and was inspired to write you. The impact that you took from that accident could have caused one of the bones to shift out of alignment in the upper part of the neck, resulting in severe pressure on the CNS. If you have the time and want some information do a search for upper cervical care on the web or go to www.upcspine.com and read about this type of care that has improved the quality of life of many. If you have any questions I would be happy to write you. God Bless you, drtrevens@hotmail.com

 
At 8:15 PM, Blogger BDiggans said...

I don't know if this blog is still up and working... but I figured I would give it a shot. I am one of those random people that you don't know that have stumbled upon your website through some means and have truly gained as a person from your life's lessons.

I'm a 26 year-old triathlete that, for the time being, lives in Tampa, Florida. I graduated from Florida State University 4 years ago and have been a part-time triathlete/part-time world nomad (www.braddiggans.com) but full time questioner of life and lover of learning from others.

When I don't feel like running, or biking, or going to my job the next day- I go to your website... get amped on some looping "Braveheart" quotes, get the NBC Ironman video cranking in the background (don't need to visually watch it anymore... after the 100th time I know you're going to log roll over that finish line like a champ... a tired champ) and read, certainly not for the first time, your poems of getting the most out of life and being a good person while you're on this earth.

I'm not real sure where I will fit into this world of ours, but I can assure you that I will do my best to enrich the lives of those I touch. I think you taught your children that as a teacher, and you fortify the beliefs of those you've been in contact with through your words and creativity.

You've changed lives Blazeman. That disease can strip you of all the muscles it wants to strip you of, but I can assure you that it will never be able to demolish the inspiration you've created through gut busting reality and LIVING the life you were given.

Thank you for continuing to make a difference in this world. I hope to become an IRONMAN in the coming years and I can assure you when I make it to that finish line, sometime deep in the black of night, I will log roll across the finish line and "whatever I do, get it on film."

ALS Warrior Poet fan,

Brad Diggans
bdiggans@yahoo.com
813.785.9938

 
At 8:16 PM, Blogger BDiggans said...

I don't know if this blog is still up and working... but I figured I would give it a shot. I am one of those random people that you don't know that have stumbled upon your website through some means and have truly gained as a person from your life's lessons.

I'm a 26 year-old triathlete that, for the time being, lives in Tampa, Florida. I graduated from Florida State University 4 years ago and have been a part-time triathlete/part-time world nomad (www.braddiggans.com) but full time questioner of life and lover of learning from others.

When I don't feel like running, or biking, or going to my job the next day- I go to your website... get amped on some looping "Braveheart" quotes, get the NBC Ironman video cranking in the background (don't need to visually watch it anymore... after the 100th time I know you're going to log roll over that finish line like a champ... a tired champ) and read, certainly not for the first time, your poems of getting the most out of life and being a good person while you're on this earth.

I'm not real sure where I will fit into this world of ours, but I can assure you that I will do my best to enrich the lives of those I touch. I think you taught your children that as a teacher, and you fortify the beliefs of those you've been in contact with through your words and creativity.

You've changed lives Blazeman. That disease can strip you of all the muscles it wants to strip you of, but I can assure you that it will never be able to demolish the inspiration you've created through gut busting reality and LIVING the life you were given.

Thank you for continuing to make a difference in this world. I hope to become an IRONMAN in the coming years and I can assure you when I make it to that finish line, sometime deep in the black of night, I will log roll across the finish line and "whatever I do, get it on film."

ALS Warrior Poet fan,

Brad Diggans
bdiggans@yahoo.com
813.785.9938

 
At 5:46 PM, Blogger chrissy said...

Hi Jon,

I attended SHS with you. My name is Chrissy Marchetti Collins (married name). I was told your story from mutual friends. After reading your entire website, I couldnt help but notice how many lives you have touched (including mine). Thank you for sharing your strength and courage with me. You should be so proud of yourself. You will be in my prayers.
Love,
Chrissy

 
At 7:35 AM, Blogger BDiggans said...

For Mr. Blais,

This is Brad Diggans. After leaving a few words on the Blog, you were nice enough to call me and thank me for my encouragement. As simple as it may have been, I was absolutely blown away that you called me and had a nice chat.

You had mentioned you all were coming down for the 70.3 in Clearwater in November and we should meet up for a coffee. I wanted to follow-up on that and see when you are heading down South. It would be an honor to meet you all.

Please contact me if you will be in Clearwater this month, or whenever you are in Florida.

To the Blazeman- hope you're having more "better days" with each that passes.

Thanks,

Brad Diggans
813.785.9938
bdiggans@yahoo.com

 
At 1:42 PM, Blogger BDiggans said...

Oooooo Man was it a good time having a chat with you all surrounded by the electric atmosphere of the registration area in Clearwater. Thanks for taking a little time away from the ice cream stands to let me ask you a hundred questions.

Jon, it was a true inspiration to see that you really do have a little William Wallace in you. We need to get you some blue face paint to wear when you're working on your website!

The Duffy's, the Wolski's, me and a whole bunch of other folks- you're really getting this fire cooking! Team Blazeman is going to be a steamroller.

I was out riding in a fierce headwind yesterday with the iPod cranking in my ears, at a volume my mother would no doubt disapprove of, and was thinking what a lucky man I was to have met the whole Blais crew.

That Thursday, my friends may have marched in the boots of their careers and made a dollar or two. But when the sun dipped into the Gulf of Mexico at the end of that day, after learning from a true fighter, I felt that I was the richest of them all.

Let me know when you all are making the stroll South to Ft. Myer's for the winter. You can never have enough ice cream!

Brad "the question asker" Diggans

 
At 4:11 PM, Blogger Harry West Townsend said...

Try some good nutrition > NO FOOL I could help - ascorbates for your muscles and a good calcium is worth a try.

Have you checked your body's pH level? Too much acid can cause lots of health problems. Please visit //www.ph-ion.com for a brochure and free pH stixs.

No Fool I
1006 Retail Price $69.95 Member Price $9.00
2 teaspoons contain
750 mg Vitamin C as Magnesium Ascorbate
750 mg Vitamin C as Sodium Ascorbate
750 mg Vitamin C as Calcium Ascorbate
750 mg Vitamin C as Potassium Ascorbate
250 mg EGCG Polyphenols - Green Tea Extract
3000 mg L-Lysine
500 mg L-Proline
2700 mg Stevia
5000 mg Citric Acid
=======
Master Formula II
1002 Retail Price $67.95 Member Price $7.00
One teaspoon contains:
600 mg Calcium Ascorbate
345 mg Magnesium
10,000 iu Vitamin A
200 iu Vitamin D
250 mg Potassium
1000 mg Xylitol
50 mg Silica
400 mg malic acid

=========
This information comes from Nobelists and has helped many people with cancer, stroke, arthritis, alzheimers, parkinsons, heart disease, lupus, etc. so why not give it a try? It's not a poison like the pharmaceutical drugs.

Please do your own research! Become your own FDA!
---------------------------

Information comes from Nobel Scientists - Dr. Otto Warburg, Dr. Linus Pauling, Dr. Matthias Rath - //www.drrathresearch.org

The human body will heal itself if we give it what it needs.


Please listen to the audio's on the website and this 8 minute message - 1.212.990.7002
<>//www.ashnow.com/itisup2me > //www.freewebs.com/itisup2me

May 31 2006 Product Call
http://PlayAudioMessage.com/play.asp?m=312913&f=ZXQZYB&ps=14&c=FFFFFF&pm=2&h=29

May 27 2006 Product Call
http://PlayAudioMessage.com/play.asp?m=312911&f=LDYDDH&ps=14&c=FFFFFF&pm=2&h=29

Tim Morris - Diagnosed with abdominal cancer considered terminal in
November 2002
http://PlayAudioMessage.com/play.asp?m=336089&f=GSRCUL&ps=14&c=FFFFFF&pm=2&h=29


Weekly calls on Wed. 9pm, Sat. 1pm, Eastern - 1.212.990.8000 pin 3024#

NO FOOL I will help the skin, muscles, tendons, eyes, etc.

Something else that is great for skin burns, rashes, etc. is Derma Tox - //www.HealthyHabitsWeb.com (id 495917)
Thu. 9pm Eastern 1.712.432.2323 code 77361# (get the special code for Friday Only)

God Bless You!
Harry Townsend
Baltimore MD itisup2me@excite.com

I am a VFW member in Baltimore MD - 1969-70 Viet Nam

==Resources >
Cancer Help - //www.cancertutor.com //www.cancer-coverup.com

Diabetes - //www.cartoonMD.com

 
At 10:40 PM, Blogger DDB said...

OKAY I WORK AT A PRISON AND AN INMATE HAS THIS DISEASE, I KNOW IT MIGHT BE HARD FOR A "FREEMAN" TO UNDERSTAND BUT THIS MAN IS STILL GOING THROUGH ALL THE TRIALS AND TRIBS THAT ANY OTHER MAN WOULD BE. HE JUST WANTS TO KNOW WHAT TO EXPECT WITHIN HIS BODY, LIKE WHAT A CERTAIN FEELING MIGHT REALLY MEAN. HE KNOWS EVERYONE IS DIFFERENT, ANY KIND OF FEEDBACK I CAN GIVE HIM WILL BE A BLESSING FOR HIM, HE IS NOW IN HOSPICE BUT HE IS VERY INTERESTED IN FINDING SOME INFO ON THIS, HE IS NOW WRITING HIS OWN EXPERIENCE WITH THIS AND HIS DESIRE IS TO LEAVE A CHRONICLE OF HIS EXPERIENCE FOR OTHERS TO GAIN AN INSIGHT OF THIS DISEASE, OFCOURSE HE WILL NOT HAVE THE ADVANTAGES OF THE FREEWORLD TO HELP HIM THROUGH ALL OF THIS, BUT SOME FEEDBACK WILL BE APPRECIATED, HE IS AT PEACE WITH WHAT HE IS FACING BUT AGAIN SOME COMMENTS WILL BE A BLESSING FOR HIM

 
At 8:36 AM, Blogger Tifanie said...

Dear Blazeman,

As a teacher myself, I know what a tremendous heart you must have. Thank you for the blessing that you have been to so many children. You will never know how many of them whose lives have been forever positively altered/influenced by you.
Last year ALS was a possible diagnosis for myself, but was determined to be benign by the neurologist. I often prayed and asked God why this strange syndrom (BFS) occured. When I read an article about you in an exercise magazine, I immediately felt a sense that I needed to tell you that you have every reason to still hope. With God nothing is impossible. Nothing. Keep fighting till the last day knowing that you are an inspiration to others, knowing that we are all going to the Lord and that no one knows when. You could be the miracle whose progression halts. Do not live assuming you know when you will join Him. Just live and embrace every moment and opportunity given to you. I prayed before writing this that God would speak to you directly. Here is a verse my finger fell on the first moment I randomly opened my bible....

Psalm 118 13-14

I was pushed back and about to fall,
but the Lord helped me.
The Lord is my strength and my song;
he has become my salvation.

God Bless.

 
At 2:34 PM, Blogger milf said...

black mold exposureblack mold symptoms of exposurewrought iron garden gatesiron garden gates find them herefine thin hair hairstylessearch hair styles for fine thin hairnight vision binocularsbuy night vision binocularslipitor reactionslipitor allergic reactionsluxury beach resort in the philippines

afordable beach resorts in the philippineshomeopathy for eczema.baby eczema.save big with great mineral makeup bargainsmineral makeup wholesalersprodam iphone Apple prodam iphone prahacect iphone manualmanual for P 168 iphonefero 52 binocularsnight vision Fero 52 binocularsThe best night vision binoculars here

night vision binoculars bargainsfree photo albums computer programsfree software to make photo albumsfree tax formsprintable tax forms for free craftmatic air bedcraftmatic air bed adjustable info hereboyd air bedboyd night air bed lowest pricefind air beds in wisconsinbest air beds in wisconsincloud air beds

best cloud inflatable air bedssealy air beds portableportables air bedsrv luggage racksaluminum made rv luggage racksair bed raisedbest form raised air bedsaircraft support equipmentsbest support equipments for aircraftsbed air informercialsbest informercials bed airmattress sized air beds

bestair bed mattress antique doorknobsantique doorknob identification tipsdvd player troubleshootingtroubleshooting with the dvd playerflat panel television lcd vs plasmaflat panel lcd television versus plasma pic the bestThe causes of economic recessionwhat are the causes of economic recessionadjustable bed air foam The best bed air foam

hoof prints antique equestrian printsantique hoof prints equestrian printsBuy air bedadjustablebuy the best adjustable air bedsair beds canadian storesCanadian stores for air beds

migraine causemigraine treatments floridaflorida headache clinicdrying dessicantair drying dessicantdessicant air dryerpediatric asthmaasthma specialistasthma children specialistcarpet cleaning dallas txcarpet cleaners dallascarpet cleaning dallas

vero beach vacationvero beach vacationsbeach vacation homes veroms beach vacationsms beach vacationms beach condosmaui beach vacationmaui beach vacationsmaui beach clubbeach vacationsyour beach vacationscheap beach vacations

bob hairstylebob haircutsbob layeredpob hairstylebobbedclassic bobCare for Curly HairTips for Curly Haircurly hair12r 22.5 best pricetires truck bustires 12r 22.5

washington new housenew house houstonnew house san antonionew house venturanew houston house houston house txstains removal dyestains removal clothesstains removalteeth whiteningteeth whiteningbright teeth

 
At 10:05 AM, Blogger Boris said...

John,

Homeopathy can help treat ALS...believe it or not, some homeopathic remedies like Arsenic, Plumbum Metallicum and Mercury can help. Visit a good homeopath like Rajan Sankaran he should be able to help.
Fasting..water fasting that is, can help your body rebuild the nerve cells as well. Here's a link to an excellent fasting resort, I stayed there myself: http://fasting.ms11.net/

Also eat coconuts! Their juice and pulp are great for all kind of neurosis.

My bet is on Homeopathy though...

Kind Regards,
Boris

 

Post a Comment

<< Home